Ryley continues to improve, in fact since 3am this morning she has not had an episode. She is feeding well, but the feeding tube is still in, it seems that she likes to sleep at night, and cannot be bothered to wake up and feed. She still has an IV, she is onto her 7th site in 6 days - the good news, if it comes out again her feeds will be high enough tomorrow that they will not put it back in. The nurse practitioner came to talk to me after rounds this morning to explain to me the criteria that Ryley needs to meet before she will be discharged. It is great to have information, but she told me to plan on another 4 weeks in the nicu. Ryley needs to have 5 consecutive days episode free, as well as be taking all of her food orally - those seem easy enough so maybe Ryley will surprise us, and meet them sooner, but for now we are planning on 4 more weeks.
Ryley continues to improve, in fact since 3am this morning she has not had an episode. She is feeding well, but the feeding tube is still in, it seems that she likes to sleep at night, and cannot be bothered to wake up and feed. She still has an IV, she is onto her 7th site in 6 days - the good news, if it comes out again her feeds will be high enough tomorrow that they will not put it back in. The nurse practitioner came to talk to me after rounds this morning to explain to me the criteria that Ryley needs to meet before she will be discharged. It is great to have information, but she told me to plan on another 4 weeks in the nicu. Ryley needs to have 5 consecutive days episode free, as well as be taking all of her food orally - those seem easy enough so maybe Ryley will surprise us, and meet them sooner, but for now we are planning on 4 more weeks.
5 comments:
oh i hope it's sooner- they told us a month- and it was only two weeks- these little guys are stronger than we think-love you guys! btw she has such gorgeous skin! I just want to kiss it
My 3rd was 9 wks early- 2 lbs 11 oz. They told me she would stay until her due date.. she only stayed 6 weeks not 9. They are strong and have more determination than we could imagine. It is part of who they will be their whole lives. CHerish the quiet time with her in the hospital. It gets more nuts when you get home with them.
What a trooper. She and you!
If I haven't said it before, she is beautiful!
i too hope it's sooner!!! she's a strong little girl :)!
I JUST saw your blog - I've been SO out of touch and I apologize. You have such a beautiful little girl. I pray that all improves quickly. My sister had a pre-mature baby and he had these lung problems too. I'm so sorry that you're going through this too. Just so you know, he's now five and doing great! There's always hope. I hope that you get all the strength you need and that all is up from here. I wish I was closer so I could help. Let me know if there's anything I can do from up in Edmonton.
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